Welcome to Out of the Flames

If you've just been diagnosed with Complex Regional Pain Syndrome (CRPS, sometimes still called Reflex Sympathetic Dystrophy or RSD), you are probably lost, confused, and maybe pretty scared. My dream is that this web site will become a plethora of information for those who have been diagnosed and their families. This goal is very dear to me because at one time, it was me who was scared and confused and searching the internet for information about my new diagnosis.

I Have What?!
Since I was diagnosed with CRPS, few doctors provided the information I wanted about the diagnosis, so I have began researching it as much as possible. Unfortunately, I was not able to find near as much information as I wanted to find. Though the internet had many sites on CRPS, most were vague and contained only the briefest descriptions. Other sites contained more information but the information was inconsistent, conflicting with other information I found. To make matters more complicated, there is the confusion as to the name; some web sites call it by the former name, RSD. Through my searching, I became frustrated and determined to find out the truth about this devastating syndrome.

In English, Please!
I began to search offline sources, but most were confusing, using long, difficult medical terms. Though I love learning new things and enjoy reading scientific articles and comprehending technical words, I was concerned for those who don’t. Most who are diagnosed know little and the lack of public knowledge for those searching scared me. Following this discovery, I was determined to provide the most up-to-date information about CRPS by reading the scientific research papers by the top doctors, translate it into normal language and present it to the general public to allow others to learn more about CRPS.

My Dream
Eventually, I would also like to present information from others who have experienced the pain of CRPS. While this information might be unscientific, it is something that those new to CRPS, or even those who have been struggling with it for a long time may find helpful.

Enjoy!
I hope you enjoy looking around this web site and that it gives you some information on CRPS.